Brett Johnson: THANK YOU!
Thank you for visiting my personal page!
During this very scary time of global pandemic, it feels all the more important to focus on life and on community. We may not be able to be together physically but we are one in our shared purpose. To me, friends, it feels essential to care for each other.
This year will be online, which makes is easier for you to join the Team. For Head-to-the-Hill this year, we had people "meet" from all over the country. Let's do that for Boston's October Walk, too!
Thank you for all of you who have walked with me in the last decade. If you are new to visiting here, I have an Oligodendroglioma (Oligo, for short) discovered on November 10, 2009. I had two craniotomies (12/09 and 2/12) and radiation & chemo. Because an Oligo never completely goes away, I go every six months to Dana-Farber for an MRI and blood work to see if the tumor is stable or grown. [If you want to read more about my journey: Brett's CaringBridge Journal.]
The upshot? I'm extremely grateful for my current health, my care team, my husband and family, and the overwhelming love and support from you that I have received. I'm a very blessed man.
The Walk is all about remembering. Which means it is both celebration and mourning. This year I am profoundly moved to recognize that I'm still alive over a decade after my diagnosis. Back then, we were sure this would not be the case for me, and it has not been the case for many people I love very dearly. My friend Tanya Seidel died three years ago. She was not just a co-captain for Team Oligo, she and her family became partners in my own life with a brain tumor. The tremendous sorrow of losing her to her brain tumor is... inexpressible. The Walk honors her and all like her who have fought so hard.
Team Oligo has set a high goal because Oligo research is essential for us; indeed, the new discoveries in the last few years have dramatically changed the landscape for us. The truth about Oligos is that they can reappear at any time, as we lived to our horror with Tanya, and are never completely "gone."
Here's an exciting report from last year about how your donations to Team Oligo have been used to help save lives - you are making a difference! Click here to read the report: Report for Team Oligo 2020
Won't you come to "walk" with us online this year? Since it will be online, it is so easy to join the Team from wherever you live! Come, from all over the country, please! Your presence is a gift!
If you can join us, we'd be thrilled; if not, we appreciate your support. While it is not about the money, the hard truth is that the money is what makes the research possible.
Thank you - thank you, thank you!
peace and gratitude,
If you think this page contains objectionable content, please inform the system administrator.