On June 22, 2020 I had brain surgery to remove a tumor the size of a grape just above my left ear. During the 5 hour surgery, my amazing neurosurgeon was able to remove the entire tumor. Post surgery I stayed in the hospital for 5 day (2 days in ICU) until I was discharged to continue my recovery at home. After the pathology report came back showing cancer, I began the Standard of Care (SOC) protocol which is what most brain cancer patients go through. This protocol has been in place for decades without much change. It consists of 6 weeks of radiation and a year of chemotherapy. After that, it is mostly periodic MRI scans to monitor the activity around the tumor site.
I am so grateful for the amazing doctors and support staff I have had over the past 2 years. I am working to make a change in the treatments and care for brain cancer patients to give patients and their caregivers things that I didn't have and advance the protocols for brain cancer. I have been involved in 2 studies - one for CBT-1 (cognitive behavorial therapy) for sleep habits of brain cancer patients and the other to help develop a protocol for patients who have a fear of cancer recurrence. I hope my contributions will help other patients but there is more we can do.
National Brain Tumor Society is fiercely committed to finding a cure for brain tumors. They are aggressively driving strategic research and advocating for public policies that meet the critical needs of the brain tumor community. Your support ensures this important work will continue.