Welcome to My Personal Page
I am uniting with others to make a difference in the fight against brain tumors. I am passionate about this cause, so I’m taking action. I need your help in this fight. National Brain Tumor Society will not rest until a cure exists - but more needs to be done. Please join in my effort!
My son Jessey was diagnosed 6 years ago with GMB. He had a successful resection with no recurrence to the initial site. His surgery left him with left sided weakness which improved with physical therapy. He acclimated and compensated with this loss. He continued to be a productive worker a loving father of 4, son, brother, friend and husband. In September two years ago he was diagnosed with Leptomeningeal Disease or (drop down syndrome) where cancer cells dropped to his spinal column. He completed proton radiation and chemotherapy and remained stable for a year. He then participated in a Leptomeningeal trial at Johns Hopkins and another trial through Sloane Kettering.
His doctor at Sloane Kettering remained very encouraging. A few treatments into the trial a small brain bleed was detected after Jess suffered a seizure. Jess was told the brain bleed was stable.
Jessey was adamant about going on our annual family vacation which he specifically requested to be at a lake house for the year of 2023. Sadly, Jess passed away on our last day of our family vacation at the lake house in Maine.
Jessey was a very giving, loving person. He refused to use a parking disability tag saying others needed it more. He was at the constant call of his sisters when needed to talk, give advice or help with a car issue. He kept his humor and beautiful smile through the hardest times of life.
When Jess passed away he left a list behind of goals he wanted to achieve. He wanted to get back into activities that made him happy, but he also wanted to raise money to donate for others with disabilities to have the equipment they needed to enjoy life.
We run for Jess because we love him, miss him but know he is with us cheering us on.
National Brain Tumor Society is fiercely committed to finding a cure for brain tumors. They are aggressively driving strategic research; advocating for public policies that meet the critical needs of the brain tumor community; and providing comprehensive patient, family and caregiver resources. Your support ensures this important work will continue.
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